A lot of time goes by and...

I posted this as an answer to a comment, but thought I should add this as a blog entry.  Thanks, everyone:


Everything is well.  I paused posting during my rehabilitation from radiation.  The rehab period was the most difficult period for me, partly because I was at home and not interacting with other patients and clinicians (partly because the impact of treatment peaked.)

I am cancer free and now over 15 months since completion of treatment.  My body has reached its new normal.  My stamina is fine but well below its level before I got sick.  Need a daily nap.  Can exercise and do most days.

My swallowing is very good - just eat slowly and avoid super dry foods.  My taste buds & sense of smell have "evolved."  Food that used to be my favorite (West Asian, Italian pomodoro) are not real enjoyable.  Food that I used to rarely eat (Indian, East Asian, in general spicy food, poached eggs) I now love.  Not sure if it's good or bad, but I haven't found a dessert that I like.  Thankfully, coffee - my prime vice - is once again delicious.

I wake each morning grateful for the day.  I have no bad days; each is precious and should not be wasted.  Cancer takes but gives.  I learned a lot about myself, gained perspective, and had the wonderful gift of seeing friends & family gather around and help me.

Next Sunday, I'll walk the Dana-Farber Cancer Walk (opted for the five mile).  Last year, I could only be a virtual walker.  A year later I look back and recognize how lucky and blessed I am - with friends & family & strangers who prayed - and with the care and expertise of the clinicians and physicians at Dana Farber.

If you know anyone who is going through diagnosis or treatment for cancer - especially head & neck/throat & tongue - who needs someone to talk or correspond with, please let me know.  I relied on the experience of others and am happy & fulfilled to share hand-hold whatever.

Thanks again everyone.  You walked the path with me and I never felt alone.

Love,

Richard